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I’m currently attending college completing level 3 health and social care course…

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I’m currently attending college completing level 3 health and social care course and trying to raise awareness of a health condition with a group of my peers.
We have chosen Ectopia Cordis – when the heart forms outside of the chest wall.
Does anyone have any information on this as we have looked online in articles and not a lot is available with actual cases as it is that rare.
Any help would be much appreciated if you know anything about it. Thanks
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