So today we went to the park … I’m not going to lie I hate taking kacie to the park … the stares, the fact she can’t really use much is a total nightmare ….
We were standing watching all the kids in the water and this little girl comes over and said as blatant as ever “what’s the matter with her” I said ahh she’s got something called sma . So she asked the usual can she walk ect …. I said no … she said ” ahh right give me her here and I’ll push her she can come and play with us”
Thankyou Demi you’ve made kacies day ❣️
By Nicole Williams
Spinal muscular atrophy (SMA) is a genetic disease affecting the part of the nervous system that controls voluntary muscle movement. Most of the nerve cells that control muscles are located in the spinal cord, which accounts for the word spinal in the name of the disease.
Symptoms of SMA may include:
- muscle weakness and decreased muscle tone.
- limited mobility.
- breathing problems.
- problems eating and swallowing.
- delayed gross motor skills.
- spontaneous tongue movements.
- scoliosis (curvature of the spine)